Yawning
Learn how severe yawning episodes affected our son with ALS and the practical solutions we used to ease jaw clenching, eye tearing, biting, and more.
Learn how severe yawning episodes affected our son with ALS and the practical solutions we used to ease jaw clenching, eye tearing, biting, and more.
Highlights the serious shortcomings of “accessible” public restrooms and shares real experiences, tips, and caregiver support for ALS bathroom access.
Explores palliative and hospice care, end-of-life options like MAID and VSED, and our family’s ALS journey to help others plan with compassion and clarity.
Learn about managing constipation, elimination, and urination in ALS patients with effective strategies, assistive devices, and medical solutions for comfort.
Difficulty swallowing tablets, capsules and caplets Early in our son’s ALS journey, and before he got a feeding tube, he still had some ability to
Introduction This article on my website has two main parts: a general discussion of both our son’s and our own experiences handling marijuana and the
Learn how to prevent and treat pressure sores in ALS patients with effective bandages, treatments, and care strategies to enhance comfort and healing.
Navigating air travel with a disability? Our guide offers essential tips and resources to ensure a smooth and accessible flying experience.
ALS sufferers bite their lips, tongues, and cheeks all the time. Our son was constantly doing this. Most of the biting was caused by violent yawning.
Here is a great printout for ALS patients and their caregivers to give to any medical personnel.
A quick list of common pain medications, some of which brought relief to our son. We did a lot of trial and error.
ALS causes facial muscles to atrophy, making it difficult to swallow food as well as saliva. Here is a discussion on drooling, saliva, and mucus and the medical ways we used to deal with them.
We kept all our son’s medications in a box on a rolling cart and developed a system for tracking them.
Numerous medications and treatments have been touted to relieve or even “cure” ALS. I urge extreme caution. We found that many did nothing for our son.
My mother-in-law once said, “If you’re having a foot problem, go to a doctor who got an ‘A’ in foot.”
From our experience taking care of our son, professionals saw him only during an office visit or home visit, so they had just 15-minute snapshots separated by weeks and months.
