Become A Paid Caregiver For A Family Member
This information can be found at: https://www.usa.gov/disability-caregiver. Some government programs pay family or friends of people with disabilities to help with daily activities. This can
This information can be found at: https://www.usa.gov/disability-caregiver. Some government programs pay family or friends of people with disabilities to help with daily activities. This can
Learn how to recognize, report, and prevent financial exploitation and abuse of ALS patients and other vulnerable adults, with resources and guidance.
Explores palliative and hospice care, end-of-life options like MAID and VSED, and our family’s ALS journey to help others plan with compassion and clarity.
Our son Jeremy, who passed away 10.29.21 from ALS, wrote a book (published June 2022), “Never Say Invisible” (https://www.neversayinvisible.com/book/ ). The book discussed discrimination against
Learn about organ and brain tissue donations for ALS research, including the process, benefits, and how to contribute to advancing medical science.
Learn how to organize important documents, legal matters, and personal plans to ensure peace of mind and preparedness for individuals and families facing ALS.
Because ALS is a progressive disease, it will continue to get worse. Learn as much as you can about what you will need before you need it so you can be ready for what’s ahead.
When our son moved to a push wheelchair and then to a power chair, we quickly discovered that getting repairs wouldn’t be easy, and not just because of the complicated design of the chairs.
My wife and I became our son’s full-time caregivers. Trying to cope with his needs left us sleep deprived and exhausted. Here was our experience working with home health aides.
When our son, Jeremy, had to stop working and go on disability, his employer provided a patient advocate for him. She was a godsend.
